California State Council on Developmental Disabilities 

2002-2006 State Plan 

From the document approved by the Administration on Developmental Disabilities (ADD) on December 3, 2001.

Note: The document listed below is the original text of the 2002-2006 State Plan. Amended Goals and Objectives were approved on October 29, 2003. 

Index (Click on the hyperlink to be taken directly to that Section)

About the 2002-2006 State Plan

Incidence of Federally-defined Developmental Disabilities

Environmental Factors Affecting Services in California

The California Service System

Barriers for Unserved/Underserved

Community Services and Opportunities

Waiting Lists

Areas of Emphasis*

*These Areas and their accompanying Goals and Objectives were amended in 2003. The Amended Areas of Emphasis, Goals and Objectives are currently available online as a Word document. Additional formats will be forthcoming.

Public Input and Review

Public Evaluation of the Plan

[Return to the Top]

About the 2002-2006 State Plan —

The California State Council on Developmental Disabilities is a federally funded independent state agency established by federal and state law. Its mandate is systemic change, capacity building, and systemic advocacy to promote a consumer and family-based system of services, supports, and other assistance. The goal of the federal law is to enable people with developmental disabilities to achieve self-determination, independence, productivity, and community integration and inclusion.

Though the Council approved and submitted the 2001-2003 State Plan only last August, on April 30, 2001, the federal Administration on Developmental Disabilities directed all Councils to begin a new five-year Plan cycle, including additional pieces required by the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act of 2000). The new Plan will cover the Council’s activities and resources from October 1, 2001 – September 30, 2006.

The California State Council on Developmental Disabilities believes that all Goals and Objectives from the 2001 State Plan remain relevant and has incorporated them into the 2002-2006 State Plan. In some cases these goals and objectives have been reclassified or renamed based on a federal shift from six “life goal areas” to nine “areas of emphasis.” The only completely new goal and objectives in the 2002-2006 Plan pertain to self-advocacy, as required by the DD Act of 2000.

At the time the 2001 State Plan was developed, the Council informed the public that the plan cycle would shift from three to five years. The objectives in the 2001 plan were created, after public input, as long-range objectives for the announced shift to a five-year-cycle. The long-range system-change issues incorporated in the plan objectives are anticipated to still be the focus of Council activities and resources through 2006. The Council will continue to review these goals and objectives annually to make any necessary modifications in Council priorities.

NOTE: The full impact of the energy crisis and economic downturn is not yet known. As it continues to unfold it may have further impact on individuals with developmental disabilities, such as increased competition for employment. This may, in turn, require modifying the target outcome numbers in future years.

[Return to the Top]

Incidence of Federally-Defined Developmental Disabilities in California

Applying the Gollay and Associate national prevalence estimate to California’s January 2001 population of 34,818,000, an estimated 626,724 Californians have a developmental disability. [January 2001 population data from the California Department of Finance Demographics Unit]  

[Return to the Top]

Environmental Factors Affecting Services in California

The Federal Administration on Developmental Disabilities asked the State Council to briefly describe a maximum of four economic, social, political or litigative factors that effect the way services are delivered for Californians with developmental disabilities and their families. For the 2001 Plan the Council selected Economic Factors, Criminal Justice System, Aging of Californians, and Healthcare. The 2002 Plan updated this information to include emerging factors such as the energy situation.

Economic Factors

California is facing an unprecedented energy crisis. State electricity prices soared from $7 billion in 1999 to $27 billion in 2000, and will likely reach at least $50 billion in 2001. The combined impact of unexpected energy expenditures and the downturn in projected revenue due to the sudden slowing of the high-tech industry means California’s 2001-2002 budget is $5.3 billion less than estimated only 4 months earlier. Canceling one-time expenditures, reducing many planned augmentations, and across-the-board spending cuts are now necessary.

The energy crisis impact is not just felt in the State’s budget. A doubling or tripling of utility bills may mean the difference between living independently or not for consumers on fixed incomes. It may also mean the loss of community-based programs. Many programs, dependent on fixed rates lagging behind costs, just barely met expenses before this crisis. Skyrocketing utility costs alone could cause deficits that threaten continuation of these services.

Previously reported economic factors continue to be of concern. Community direct care wages up to 50 percent less than public employment, coupled with extremely high housing costs, clearly impact the service system environment. The wage crisis threatens the very ability of consumers to live in the community if services and supports are not available because caregivers cannot afford to work in this field.

California’s March 2001 existing single-family home median price was $262,980, astronomically out of reach for someone whose SSI or minimal-pay income qualifies for no more than a $40,000 home loan. Lack of any houses at such prices and SSI regulations prohibiting accumulation of cash needed for a down payment are huge barriers to ownership.

There is also a severe shortage of affordable rental housing. Housing authorities are so overwhelmed with rental assistance applications that new requests are only taken on occasion. Even when accepted, waiting times range from 2-10 years.

The Criminal Justice System

The right to community inclusion must not require unnecessary risk of harm or abuse. It must include full access, rights and protections within the justice system for individuals with developmental disabilities, whether victims, witnesses, accused or convicted, and include systemic advocates ensuring that those rights are met.

Victims with developmental disabilities are subject to burdens of proof not placed on other victims. Competency is routinely questioned, despite Evidence Code Section (ECS) 700 that says, “except as otherwise provided by statute, every person is qualified to be a witness and no person is disqualified to testify to any matter.” No statute states that a person with cognitive impairment is unqualified. ECS 701 states "a person is disqualified as a witness if he is incapable of expressing himself so as to be understood (directly or though an interpreter) or is incapable of understanding the duty to tell the truth." Judges and attorneys, rather than developmental disability experts, make these determinations. State laws and programs protect children under 12 who are crime victims from being further victimized by the process, but such protections and programs are lacking for those with cognitive limitations whose chronological age is over 12. Families are not told of their procedural rights, and misperceptions that some with disabilities cannot benefit from victim services means help is not available.

The State's capacity for housing and treating a fast-growing population of offenders with developmental disabilities is also severely strained. Legislation requires placement priority at Porterville Developmental Center for any consumer charged with a violent felony who is incompetent to stand trial and judicially ordered into placement at a secure treatment facility. The Center is now at capacity and working with the courts to defer admissions based on available bed space. The DDS challenge is to meet forensic needs without sacrificing needs of other consumers.

Aging of Californians

The same baby boomer dynamics impacting society overall also impacts developmental services. Added to the larger population base is the increasing life expectancy of consumers. From December 1993 to April 3, 2001, the number of DDS consumers age 62 or older grew by 69.9 percent. Not only are there more individuals to serve, the system must find a way to provide appropriate services for years or even decades longer.

In 1993, consumers age 42 and older represented 14 percent of the total caseload. By April 3, 2001 this has risen to 17 percent. A recent DDS analysis of trends over a six-year period (January 1994 – December 1999) found an increase in consumers who enter the system for the first time in their mid 30’s. One possible explanation is that aging parents and guardians may be less able to continue providing the required level of care and support as their own health declines. For all age groups up through 41, far more consumers live with parents or guardians than anywhere else; however, beginning at age 42, community care facilities become the most common living arrangement. Alternatives must be planned for, and it is uncertain if sufficient community living options and supports will be available to meet this need. Aging parents are acutely concerned about what will happen to their adult children when the parents become incapacitated or die.

Consumers in community care facilities also face obstacles to aging gracefully. For many consumers, medical issues related to age rather than disability make it difficult to continue in day programs, but existing staffing patterns and reimbursement rates do not easily accommodate options that allow consumers to retire and stay home.

This demographic shift requires such age-related services and supports as: Alzheimer's care; "supported" retirement; inclusive senior programs; maintaining one's chosen living option following illness or death of the parents; and even disability-appropriate bereavement services. California's senior services and supports initiatives must include both seniors with developmental disabilities and seniors who are primary caregivers for consumers of all ages.

Health Care

The energy crisis affects the health of those with developmental disabilities. Power outages are annoyances or inconveniences for most people. But for those with disabilities who depend on respirators, home dialysis machines, or electrical assistive devices, an outage can have significant, even life-threatening, consequences.

 A community healthcare shortage for those with disabilities exists due to:

  1. inadequate reimbursements

  2. lack of appropriate specialists and generalists trained in DD

  3. accessible healthcare equipment

Many health professionals do not accept MediCal due to very low reimbursements. The resulting shortage can mean children with epilepsy or cerebral palsy must wait up to six months for a neurology appointment. The total lack of therapists means consumers may be seen infrequently or not at all.

In 1993, 19.7 percent of consumers with medical problems lived in developmental centers. By April 3, 2001, this decreased to 10.3 percent. Community-based services now serve consumers with more significant medical challenges, yet a critical shortage of nurses, therapists, and other health professionals exists.

Appropriate mental health services for those with developmental disabilities are also a major concern. A new State law requires health plans to cover mental health equally with physical health, including services for those with autism. This will improve future access, but services are not yet widely available. Also, few mental health professionals have been trained to work with people with developmental disabilities.

Consumers with severe behavior problems have also left developmental centers, with the percentage living in DCs dropping from 34.1 percent (1993) to 12.9 percent (2001). This shift has been primarily borne by parents — rising from 38 percent to 60.9 percent over the same period. The development of respite and other supports for those who live at home and secure residential treatment options for individuals who are a danger to self or others continues to be a major SCDD concern.

[Return to the Top]  

The California Service System

The Administration on Developmental Disabilities asked the Council to summarize its review and analysis of the state service system for people with developmental disabilities. In 2001, the Council submitted information based on the Council's System Review. For the 2002-2006 Plan, two new sections were added – Consumers Served and Disabilities Served.

Overwhelming Complexity

Complexity is a hallmark of California Government as a whole. The 1992 U.S. Census figures reported 4,392 separate governmental structures within California. This complexity is no less true, and often times is actually compounded, for the developmental disabilities service system. It is multidisciplinary, multi-departmental, and multi-governmental (federal, state, region, county, city) in both form and function.

The California Department of Developmental Services, through its local service system of 21 private nonprofit regional centers, is responsible for meeting the needs of California’s consumers, but only as the payer of last resort. If the Individual Program Plan (IPP) identifies a necessary service, it is the responsibility of the regional center to provide it – but only if it cannot be obtained through other means. This has at least three negative outcomes:

  1. Consumers and families must go through the laborious process of receiving service denials from other agencies before a regional center will pay for services;

  2. Necessary services are delayed; and

  3. Regional centers have no incentive to volunteer service suggestions in the IPP.

The state mandate in the developmental disabilities service system is to exhaust all other service options before relying on the developmental services system. Other state and local agencies provide “generic” services that may or may not be available to individuals with developmental disabilities. These other agencies do not enjoy entitlement status and therefore may not be motivated to provide services to our consumers if regional centers are responsible for filling in the gaps. This disparity in departmental missions can lead to delays in service, frustration, inefficiency, and confusion, even among state agencies, as to which agency is appropriately responsible for which services.

Open-Ended Entitlement vs. Capped Appropriation

Regional center budgets are not built upon the collective needs of their consumers, but on a 1970's funding methodology based on historical expenditures and caseload growth. This budgetary formula creates a difficult balance between stewardship of the regional center's annual appropriation and development of comprehensive assessments of each consumer's service and support needs.

California is the only state that mandates access to services and supports for individuals with developmental disabilities and their families as an entitlement. In that context, it is difficult to identify and meet all the needs of consumers without imposing waiting lists. The Council is advocating for development of new funding models based on consumer needs identified in the IPP. The Council is also advocating for the establishment of an interagency reimbursement mechanism that would clarify disputes regarding generic services. These overarching systemic reforms would allow service utilization review policies of regional centers to be more proactive in favor of consumers.

Having identified these issues in its developmental disabilities service system review, the Council is working with various elements of the system to advance these reforms.

The Role of Parents and Family

Most Californians reaching adulthood do not immediately distance themselves from their families. It is illogical to automatically promote such distancing for individuals with developmental disabilities in California’s service system.

The Developmental Disabilities Assistance and Bill of Rights Act states that individuals with developmental disabilities and their families are the primary decision-makers regarding the services and supports they receive. Through interpretation, California law makes two major distinctions regarding the role of families:

  1. Families of consumers under 18 are a legal part of all planning and decisions regarding the consumer, unless a guardian has been court appointed; and

  2. Families of consumers 18 and over are considered to have no legal role in plans and decisions regarding the individual unless:

    a)   the family member is the court appointed conservator;

    b)   the area board has appointed the family member as “authorized representative;” or

    c)   the individual with developmental disabilities pro-actively insists that their family member participate in a given meeting and/or decision.

At some regional centers and other State agencies, family members’ names and addresses are routinely removed from mailing lists when individuals with developmental disabilities reach age 18. Likewise, in some system databases, there is no method of noting if an adult is conserved, unless the Department of Developmental Services is the conservator. It is the consumer's responsibility to specifically request that the family be included. Clearly a consumer over the age of 18 has the right to exclude parents from their decision-making process. However, there should be a default presumption of family involvement unless consumers indicate otherwise, especially in cases where the adult consumer is not able to express an opinion.

The system must also provide appropriate tools to enable parents to act in the best interests, and on behalf of, their minor and adult children.

Quality

Californians with developmental disabilities and their families have a right to expect, and even demand, quality from the developmental disabilities service system.

However, many concerns have been raised about quality issues in the system.

While the term "quality" is utilized throughout the federal and state laws governing the developmental disabilities system, there is no standardization or any universal testing model to measure either individual or system progress. Universally understood indicators of quality are needed.

Regional centers are mandated to assure an outmoded notion of quality (i.e. meeting minimal standards) without the protection afforded other state agencies in the conduct of their work.

Current law requires regional centers to vendorize all providers who meet basic administrative criteria. These criteria do not include required experience or any other clear indication of an agency's ability to provide quality services and supports. Person-Centered Planning meetings emphasize consumer and family choice, but consumers, families, and others have little objective information on provider quality.

Rates paid to providers are generally not seen as adequate to assure quality services and supports. High staff turnover and low morale can be further impediments to quality services and supports. There are currently no incentives for providers to be more creative and excel at providing quality services and supports.

When problems surface there has been a tendency to impose layers of regulatory process requirements on the service system. Rarely, however, do these new requirements solve the identified problem. Contemporary thought on quality asserts that a true commitment to providing quality services cannot be imposed externally. The service system would benefit from some of the continuous quality improvement models that have been successful in other fields.

Consumers Served

An analysis of current consumer statistics reveals some major demographic shifts.

The number of consumers ages 0-21 now represents more than 50 percent of the entire developmental disabilities service system caseload.

During the consumer’s schooling years (up to age 22 in the special education system), the majority of the needed services and supports are provided through the IEP process and paid for by the education system. The need to plan for a huge increase in consumers who will be aging out of the education system and turning to the regional centers for all their service and support needs is critical. The potential impact on the regional center system and the Purchase of Service (POS) budget cannot be ignored.

The other major shift in the number of consumers served concerns ethnicity and the need for an increase in culturally appropriate services. Accounting for only 44 percent of the total, Whites no longer constitute the majority in the overall statewide caseload. Over 25 percent of the total caseload is Hispanic. Over 20 percent of the total caseload has a primary language other than English.

The shift in the population is even more apparent when you look at the statistics for the 0-21 population. According to April 3, 2001, DDS CDER statistics, Hispanics represent 35 percent of the 0-21 caseload, with Whites representing only 34 percent. The number of non-English speaking families is also higher, with over 28 percent of the total 0-21 caseload indicating a primary language other than English.

Among the Hispanic population the number of non-English speaking consumers rises to 58 percent. More than 82 percent of Hispanic consumers live in the family home, increasing the likelihood of regional center interaction with multiple non-English-speaking family members and further indicating the need for linguistically and culturally appropriate staff.

Disabilities Served

Not only have there been changes in the consumers served, the types of disabilities served are also experiencing a distinct shift. While other disabilities have always been served, the majority of services were designed around the needs of those with mental retardation or cognitive impairments. In December 1993, consumers without mental retardation/cognitive impairments comprised only 11.6 percent of the active DDS caseload. As of April 3, 2001 this had risen to 18.2 percent.

During the same time period, the number of individuals diagnosed with autism has skyrocketed. In 1993 the Department of Developmental Services (DDS) served 4,911 individuals with autism. By April 3, 2001 this number had grown to 14,777, a 201 percent increase, with 700 new cases diagnosed in the first quarter of 2001 alone. This rise in numbers far outpaces the overall growth in the consumer population. In December 1993 less than 5 percent of the caseload consisted of consumers with autism, yet by April 3, 2001 the percentage of the total has risen to more than 10 percent.

The necessity to adapt the service system to the particular needs of an increasingly diverse population is apparent. It is difficult, and in some areas impossible, to find enough providers to meet the demand for health, mental health, respite, and other services for children with autism whose behavioral challenges may include flight-risk, self-injury, or other behaviors that require up to one-on-one supervision. The lack of trained providers able to handle these challenges results in consumers and families being denied services – not for lack of eligibility, funding, or willingness – but purely from lack of available human resources. Without these needed services, particularly for children with behavioral challenges, the risk of out-of-home placement and disrupted families increases.

[Return to the Top]  

Barriers for Unserved/Underserved

The Federal Government asked Councils to briefly identify any specific barriers to services for specific populations.

Many issues listed in the Plan are made more difficult if there are additional barriers such as rural isolation or socio-economic inaccessibility.  SCDD’s Federal partner, PAI, voiced this same concern. 2001 Plan consumer testimony expressed difficulty in accessing services if workers do not speak Spanish. A 2002 Plan consumer comment indicated this barrier is true for any language – English-speaking consumers cannot make their needs known if direct care staff on duty do not speak English.

[Return to the Top]  

Community Services and Opportunities

The federal government asked the State Council for a summary of the extent to which community services and opportunities related to the areas of emphasis directly benefit individuals with developmental disabilities. This summary includes information on assistive technology/services and rehabilitation technology, current resources and projected availability of future resources to fund services; as well as health care and other supports and services received in ICF(MRs) and through the Home and Community Based Waivers.

California is making concerted efforts to improve assistive technology (AT) availability for consumers. The current major needs appear to be: 1) educating consumers and families that AT is available; 2) assisting in determining what will work best for each individual; and 3) providing proper training in the usage, care, and maintenance of equipment. Parents also report staff reluctance to provide AT to those with cognitive impairments. Because consumer knowledge of assistive technology is not widespread, it is difficult to determine the exact need for such products. This, in turn, makes it difficult to determine what resources would be required to meet the need. SCDD will collaborate with the various involved entities to increase consumer awareness. Increased awareness of AT and what it can do is an important method for achieving several Council goals and objectives.

As noted previously, there is a critical shortage of nurses and other health professionals.  The availability of Home and Community Based Services (HCBS) waivers becomes a moot point if the human resources necessary to fill needed positions do not exist. Any discussion of moving individuals into the community through expansion of HCBS waivers or other community-based services must include not only the funding, but how to actually staff positions that are funded. A comprehensive effort to systematically improve the community services infrastructure must be undertaken – not only for individuals waiting to move to the community – but for those already in the community who have yet to receive needed and approved services due to lack of healthcare professional resources. Without this infrastructure, it is impossible to achieve full community inclusion.

The energy situation continues to evolve, with the final outcome not to be known for some time. This will have an increasing impact on resources available for all other State funded services and programs, including developmental disabilities services and supports.

[Return to the Top]  

Waiting Lists

The Administration on Developmental Disabilities asked Councils to identify all Waiting Lists that exist in each State.

Department of Rehabilitation – 2,322 individuals (as of July 30, 2001)

Note: SCDD was unable to obtain other statewide waiting list information as services are provided and separate lists maintained throughout the state by numerous and varied regional, county, or other local entities. The lack of statewide data is of concern as it serves as a barrier to an accurate assessment of the statewide service system.

California is the only State in the nation with an entitlement to services for individuals with developmental disabilities. However, while California’s entitlement is open-ended, there is a fixed annual appropriation. For more on this topic, please see the California Service System Section.

An entitlement to developmental disability services, however, does not preclude the existence of waiting lists for generic services and supports, such as those indicated on the list above. The most notable examples are the subsidized housing programs. California's subsidized housing programs are overwhelmed with requests for assistance. As a result, there are only certain windows of opportunity when new applications are taken. Even those who do get on the list for subsidized rental housing currently face waiting lists of at least 2 years. In some high cost urban areas, it is not unheard of to take up to 10 years to move to the top of the list. While on the waiting list there are policies and procedures that must be followed in order to retain eligibility. Something as simple as failing to respond to a mailed inquiry can cause the time clock to begin again as the individual moves back to the bottom of the list or loses eligibility completely.

The shortage of healthcare providers willing to accept MediCal patients further limits the availability of medical and dental services. Although patients may not be on official “waiting lists,” the shortage of doctors who accept MediCal means that some children with cerebral palsy or epilepsy must wait up to six months for a neurology appointment. The healthcare shortage is not limited to doctors. In addition to the official waiting lists that exist; speech, physical and occupational therapy clients may not show up on waiting lists because they are being seen. In reality, however, they may only receive a fraction of the therapy sessions they could benefit from due to the lack of therapists compared to the caseloads. This unofficial type of waiting list will likely get worse because not enough students are choosing therapy fields as professions.

[Return to the Top]  

EMPLOYMENT

Employment Goal EM1

Californians with developmental disabilities obtain, maintain, and advance in employment consistent with their interests, abilities, and needs.

What will the Council try to achieve toward this goal?

EM1.1

2,000 California students will transition to paid employment by the year 2006 as a result of improved interagency collaboration.  

EM1.2

Council projects will enable 1,000 Californians with developmental disabilities to obtain, maintain, and/or advance in jobs of their choice by the year 2006.  

EM1.3

By the year 2006, 10,000 Californians with developmental disabilities will have improved access to appropriate training and assistive technology enabling employment of their choice, including self-employment and home-based businesses.

What impact will the Council try to achieve by 2006?

·       13,000 Adults have jobs of their choice through Council efforts

·       $1,250,000 Dollars leveraged for employment programs

·       500 Businesses/Employers who employ adults with developmental disabilities

With whom would the Council like to collaborate to achieve these objectives?

·       University Centers for Excellence

·       Department of Developmental Services, Association of Regional Center Agencies (ARCA) and Regional Centers

·       Department of Education and Special Education Local Planning Areas (SELPAS)

·       Department of Rehabilitation and its assistive technology programs

·       Employment Development Department, Governor's Council on Employment of Persons with Disabilities and local employment councils

·       Local Community Colleges

·       State Independent Living Council and local Independent Living Centers

·       Employment Provider Organizations, including the California Association of Rehabilitation Industries (CARI) and California Association of Professionals in Supported Employment (CalAPSE)

·       Area Boards on Developmental Disabilities are only considered external collaborators if these entities are no longer Council-funded

[Return to the Top]  

HOMES

Homes Goal HO1

Californians with developmental disabilities and their families have control, choice and flexibility in selecting from among a full array of living options, and are respected as the primary decision-makers regarding where and with whom they live.

What will the Council try to achieve toward this goal?

HO1.1

By the year 2006, 3,500 Californians with developmental disabilities will have information regarding, and access to, affordable rental and ownership housing.

HO1.2

By the year 2006, 6,500 Californians with developmental disabilities will obtain and maintain their preferred living option throughout their lifespan, including access to necessary services and supports.

What impact will the Council try to achieve by 2006?

·       6,500 individuals will have homes of their choice through Council efforts

·       $2,500,000 dollars will be leveraged for housing

·       125 units of affordable, accessible housing will be made available

·       12,000 people will be trained in systems advocacy about housing

With whom would the Council like to collaborate to achieve these objectives?

·       University Centers for Excellence (UAPs) at UCLA and USC

·       Department of Developmental Services, including Regional Center Housing Coordinators, Association of Regional Center Agencies and Regional Centers

·       California Housing Development Agency and Department of Housing and Community Development

·       State Independent Living Council and local Independent Living Centers

·       State licensing entities

·       Area Agencies on Aging

·       California Coalition for Affordable Housing and local housing coalitions

·       State and federal loan programs

·       Parents and families

·       Building Industry Association of California

·       Area Boards on Developmental Disabilities are only considered external collaborators if these entities are no longer Council-funded

[Return to the Top]  

HEALTH

Health Goal HE1

Californians with developmental disabilities of all ages and abilities will have access to, and benefit from, a full range of coordinated health, dental and mental health services in their communities.

What will the Council try to achieve toward this goal?

HE1.1

By the year 2006, 8,000 Californians with developmental disabilities will have access to appropriately trained medical, mental health, dental and other interdisciplinary health professionals, including nurses, specialty resources and experts.

HE1.2

By the year 2006, 1,800 Californians with developmental disabilities and significant psychiatric needs or behavioral challenges will have access to a full range of mental health services, including appropriate residential treatment options.

HE1.3

By the year 2006, 1000 infants and toddlers and their families will have access to early and appropriate diagnosis, services and supports to maximize developmental potential and strengthen families.

HE1.4

By the year 2006, 1000 families will have access to mental health counseling and other preventive supports to maximize the ability of the family to provide for their family member’s special needs.

What impact will the Council try to achieve by 2006?

·       8000 people will have needed health services through Council efforts

·       $2,500,000 dollars will be leveraged for health services

·       30 health care programs/policies will be improved

·       5000 people will be trained in health care services

With whom would the Council like to collaborate to achieve these objectives?

·       University Centers for Excellence (UCEs) at UCLA and USC

·       Department of Developmental Services, Association of Regional Center Agencies, Regional Centers

·       Department of Health Services, and in particular California Children's Services (CCS)

·       Department of Mental Health, Mental Health Directors Association and local mental health agencies

·       The Interagency Coordinating Council and Family Resource Center Network

·       State Independent Living Council and local Independent Living Centers

·       Infant Development Association of California

·       Professional organizations, including the California Medical Association and local medical associations, California Psychiatric Association, California State Psychological Association, and Society for Clinical Social Work

·       Area Boards on Developmental Disabilities are only considered external collaborators if these entities are no longer Council-funded

[Return to the Top]  

COMMUNITY SUPPORTS

Community Supports Goal CS1

Californians with developmental disabilities and their families are free to participate fully in their communities, and have the necessary community supports to enable such participation.

What will the Council try to achieve toward this goal?

CS1.1

By the year 2006, 12,000 Californians with developmental disabilities will have access to enhanced transportation services in their communities.

CS1.2

By the year 2006, 2,300 California students with developmental disabilities will have access to innovative after-school care that includes life and work skills development and social/recreational opportunities throughout the student’s educational years.

CS1.3

By the year 2006, 350 California seniors with developmental disabilities will have access to community programs serving seniors.

CS1.4

The State Council will expand development of community services and supports through Community Program Development Grants by advocating for full state funding of Area Boards on Developmental Disabilities.

What will the Council measure to report its success?

·       10,000 people have transportation services that meet their needs

·       $500,000 dollars leveraged for transportation programs

·       21 Transportation programs or policies created or improved

·       10,000 people trained in transportation

·       500 children in inclusive child care settings through Council efforts

·       $250,000 dollars leveraged for child care programs

·       58 child care programs or policies created or improved

·       500 people trained in child care

·       500 people active in recreational activities through Council efforts

·       $250,000 dollars leveraged for recreation programs

·       58 recreation programs or policies created or improved

·       500 people trained in recreation

·       1600 individuals receive formal/informal community supports

·       $6,000,000 dollars leveraged for formal/informal community supports

·       100 buildings/public accommodations became accessible

·       500 children, youth, and young adults will be served in afterschool/latchkey programs

With whom would the Council like to collaborate to achieve these objectives?

·       University Centers for Excellence

·       Department of Developmental Services and Regional Centers, including Regional Center Transportation Coordinators and vendors

·       California Department of Aging and the local Area Agencies on Aging

·       California Department of Transportation and local transportation jurisdictions

·       Department of Education and local education agencies

·       Department of Rehabilitation

·       Department of Social Services

·       State Independent Living Council and local Independent Living Centers

·       California Association of Professionals in Supported Employment (CAL-APSE)

·       State and local childcare entities and nonprofit organizations for youth

·       Ticket-to-Work vendors

·       Local governments

·